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Coles Alzheimer's What They Forget to Tell You, but I will: What They Forget To Tell You, #3 at Bayshore Shopping Centre in Ottawa, ON
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They tell you caregiving will be hard. They don't tell you what "hard" actually means.**
They don't tell you about the resentment you may feel toward someone you love. The guilt that follows. The exhaustion that sleep doesn't fix. The family members who disappear. The friendships that change. The appointments, medications, paperwork, financial strain, impossible decisions, and the strange way your own life can slowly become unrecognizable.
And they certainly don't tell you what happens to *you* while you're busy taking care of everyone else.
**What They Forget to Tell You... But I Will** is an unfiltered look at the realities of caregiving, told through the author's own lived experience and the voices and experiences of other caregivers who have said the quiet parts out loud.
Dr. Caron Leid spent twenty years caring for her mother, Marlene, who developed early-onset Alzheimer's disease at just 57 years old. But this is not simply another book about Alzheimer's disease, and it is not a traditional caregiving manual.
It is about caregiving itself.
The loneliness. The anger. The love. The anticipatory grief. The family dynamics. The moments of absurdity. The things caregivers think but are afraid to say. The advice that sounds wonderful until you try to apply it to real life. And the complicated truth that you can love someone deeply while desperately wanting pieces of your own life back.
Drawing from personal journals, lived experience, research, and the candid accounts of other caregivers, Leid examines the enormous gap between what families are told about caregiving and what actually happens once they are living it.
There are no perfect caregivers in these pages.
There are human beings doing their best in circumstances for which almost nobody is adequately prepared.
Some of these stories may make you laugh. Some may make you angry. Some may sound so familiar that you will wonder whether someone has been listening inside your own home.
That is the point.
Because sometimes the most powerful thing another caregiver can tell you is:
"Me too."
They may have forgotten to tell you.
But I will.
They tell you caregiving will be hard. They don't tell you what "hard" actually means.**
They don't tell you about the resentment you may feel toward someone you love. The guilt that follows. The exhaustion that sleep doesn't fix. The family members who disappear. The friendships that change. The appointments, medications, paperwork, financial strain, impossible decisions, and the strange way your own life can slowly become unrecognizable.
And they certainly don't tell you what happens to *you* while you're busy taking care of everyone else.
**What They Forget to Tell You... But I Will** is an unfiltered look at the realities of caregiving, told through the author's own lived experience and the voices and experiences of other caregivers who have said the quiet parts out loud.
Dr. Caron Leid spent twenty years caring for her mother, Marlene, who developed early-onset Alzheimer's disease at just 57 years old. But this is not simply another book about Alzheimer's disease, and it is not a traditional caregiving manual.
It is about caregiving itself.
The loneliness. The anger. The love. The anticipatory grief. The family dynamics. The moments of absurdity. The things caregivers think but are afraid to say. The advice that sounds wonderful until you try to apply it to real life. And the complicated truth that you can love someone deeply while desperately wanting pieces of your own life back.
Drawing from personal journals, lived experience, research, and the candid accounts of other caregivers, Leid examines the enormous gap between what families are told about caregiving and what actually happens once they are living it.
There are no perfect caregivers in these pages.
There are human beings doing their best in circumstances for which almost nobody is adequately prepared.
Some of these stories may make you laugh. Some may make you angry. Some may sound so familiar that you will wonder whether someone has been listening inside your own home.
That is the point.
Because sometimes the most powerful thing another caregiver can tell you is:
"Me too."
They may have forgotten to tell you.
But I will.
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